Ballas attributes their long lives and high quality of life. All of the women were non-smokers who consumed little to no alcohol and maintained a normal body mass index. For this report, treatment compliance was based on observations by health care providers, including study authors. Family support was defined as having a spouse or child who provided attentive, ongoing care.
Another common factor among these four women is that they had what Dr. Patients like this usually — but not always — experience relatively mild SCD, and they live longer with better quality of life. As they had relatively mild disease states, none of the women were qualified to receive treatment with hydroxyurea HU , the only FDA-approved treatment for adults with SCD. Accordingly, these patients received standard treatment including hydration, vaccination including annual flu shots , and blood transfusion and analgesics as needed.
Patients were encouraged to attend regular follow-up visits, not to smoke, watch their weight, and maintain a support system as needed.
Ballas was quick to point out, however, that this does not mean these women lived crisis-free lives. Study of sickle cell disease-related death in the United States suggests average age at death is increasing. Minus Related Pages. Did You Know…. Several strategies have been recommended to reduce the likelihood of SCD-related complications These include: Taking antibiotics every day to prevent infections Having a special type of exam called transcranial doppler screening that can help you learn your risk for stroke.
Links with this icon indicate that you are leaving the CDC website. Linking to a non-federal website does not constitute an endorsement by CDC or any of its employees of the sponsors or the information and products presented on the website. You will be subject to the destination website's privacy policy when you follow the link. CDC is not responsible for Section compliance accessibility on other federal or private website. A large proportion of those who died had no overt chronic organ failure but died during an acute episode of pain, chest syndrome, or stroke.
Early mortality was highest among patients whose disease was symptomatic. A high level of fetal hemoglobin predicted improved survival and is probably a reliable childhood forecaster of adult life expectancy. Abstract Background: Information on life expectancy and risk factors for early death among patients with sickle cell disease sickle cell anemia, sickle cell-hemoglobin C disease, and the sickle cell-beta-thalassemias is needed to counsel patients, target therapy, and design clinical trials.
Publication types Research Support, U.
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